Website
http://dataportal.arc.gov.au/NCGP/API/grants/DP180100269
Funding Status
Active
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Funded Activity Summary
Genomic data sharing: issues in law, research ethics and society. This project aims to provide recommendations for best practice regulation and governance of genomic data sharing in Australia. Sharing of genomic data is essential to biomedical research and clinical practice. Scenarios will be used to map legal and quasi legal facilitators issues including barriers to sharing, and to assess their role in promoting public trust, using evidence-based processes and law reform methodology. Developing more effective and efficient regulation of genomic data sharing will promote public trust and encourage broader data sharing, facilitating scientific progress and delivery of precision medicine.Funded Activity Details
Start Date: 2018
End Date: 12-2024
Funding Scheme: Discovery Projects
Funding Amount: $614,454.00
Funder: Australian Research Council
Research Topics
ANZSRC Field of Research (FoR)
Ethical Use of New Technology (e.g. Nanotechnology, Biotechnology) | Law | Law not elsewhere classified | Social and Community Psychology
ANZSRC Socio-Economic Objective (SEO)
Technological Ethics | Expanding Knowledge in Psychology and Cognitive Sciences | Law Reform |
